Registration form
Remind me later

8th Meeting of Nordic Baltic Fabry Expert Group

Date, time
Thu, Sep 25 2025, 9:30 - Fri, Sep 26 2025, 13:00
Location
„Courtyard by Marriot Vilnius City Center Hotel“ (Rinktines St. 3, Vilnius, Lithuania)
8
8th Meeting of Nordic Fabry Expert Group
CREATIVA
Tickets no available yet? Remind me later
Price
Vardas ir pavardė sertifikate bus įrašyti taip, kaip nurodysite formoje
REGISTRATION FEES:
Participant
0 EUR

Dear Colleagues,

We are delighted to invite you to participate in the International Conference ‘8th Meeting of Nordic Baltic Fabry Expert Group’, which will be held on September 25-26, 2025, at the Courtyard by Marriott Vilnius City Center Hotel in Vilnius, Lithuania (Rinktines St. 3).

Registration and Accommodation:
Please complete the online registration process by August 1, 2025.
We have booked rooms at the conference venue Courtyard by Marriott Vilnius City Center Hotel.
Please note that hotel accommodation must be booked during the registration process.

Organizing committee:
Prof. Marius Miglinas (Lithuania)
Prof. Rimante Cerkauskiene (Lithuania)
Dr. Agne Kerpauskiene (Lithuania)

Certificates:
Certificates will be issued for all conference participants.

Reimbursements:
The organizer covers economy class flight tickets which must be purchased at the latest 1 month before the meeting, to avoid booking last-minute flights which are normally more expensive. The organizer will refund all your travel expenses (flight, train, bus tickets, and taxi) after the meeting. To get the refund, please remember to complete and return the refund form no later than 3 weeks after the event by email to conference secretariat eimantas@creativa.lt (no refunds will be possible after this date). Reimbursements will be processed by means of one single bank transfer. We therefore kindly ask you to please list all expenses incurred when travelling (taxi, bus tickets, if any) and include them in the refund form. Digital copies of the receipts must be enclosed in the attached refund form.

PROGRAM DOWNLOAD
Conference secretariat | CREATIVA +37061850782 eimantas@creativa.lt
Price
REGISTRATION FEES:
Participant
0 EUR
PRELIMINARY PROGRAM
September 25th, Thursday
9.00-09.30
Registration
09.30-09.35
Opening Remarks Prof. Marius Miglinas & Prof. Rimante Cerkauskienė (Lithuania)
09.35-12.00
Session 1: National and International Perspectives on Fabry Disease Chairs: TBA
09.35-10.30
National Updates on Fabry Disease: Key Issues and Challenges All delegates
10.30-11.30
Advancements in Fabry Disease: Latest Data and Treatment Approaches Prof. Marco Spada (Italy)
11.30-12.00
Discussion
12.00-13.00
Lunch
13.00-14.15
Session 2: Innovations and Collaborations in Fabry Disease Research
Chairs: TBA
13.00-13.30
Insights from the followME Fabry Pathfinders Registry Prof. Derralynn Hughes (United Kingdom)
13.30-13.40
Discussion
13.40-14.15
Therapeutic Innovations in Fabry Disease: A Review of Recent Developments Prof. Camilla Tøndel (Norway)
14.15-14.45
Coffee Break
14.45-15.00
Nordic Collaboratory Initiatives All delegates
15.00-17.00
Session 3: Clinical Manifestations and Diagnostic Innovations in Fabry Disease
Chairs: TBA
15.00-15.30
Respiratory Impairments in Fabry Disease: A Clinical Overview Copenhagen University Hospital – Rigshospitalet Team representative (Denmark)
15.30-16.00
The Role of Artificial Intelligence in Screening for Fabry Disease TBA
16.00-16.20
Discussion
16.20-16.50
Cardiac Magnetic Resonance Imaging and Myocardial Histological Findings in Fabry Disease Prof. Johanna Kuusisto (Finland)
16.50-17.00
Discussion
17.00-17.15
Coffee Break
17.15-18.30
Case Session 1 Chairs: TBA
17.15-17.30
Case Report 1
17.30-17.45
Case Report 2
17.45-18.00
Case Report 3
18.00-18.15
Case Report 4
18.15-18.30
Discussion
20.00-22.00
Dinner
September 26th, Friday
08.55-09.00
Opening of Day 2
09.00-10.35
Session 4: Emerging Clinical Insights and Symptom Management in Fabry Disease Chairs: TBA
09.00-09.25
New Knowledge on Tissue Damage in Fabry Disease: Insights from the Bergen Group Representative from Bergen Group (Norway)
09.25-09.35
Discussion
09.35-10.00
Gastrointestinal Symptoms and Dietary Management in Fabry Disease
Prof. Ilkka Kantola (Finland)
10.00-10.25
Fatigue and Sleep Disorders in Fabry Disease: Bioenergetic Alterations and Management Approaches
Dr. Agnė Kerpauskienė (Lithuania)
10.25-10.35
Discussion
10.35-11.00
Coffee Break
11.00-12.00
Case Session 2
11.00-11.15
Case Report 5
11.15-11.30
Case Report 6
11.30-11.45
Discussion
11.45-12.00
Closing Remarks
12.00-13.00
Lunch