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SCARLET project Kick-off meeting

Date, time
Thu, Oct 10 2024, 10:00 - Thu, Oct 10 2024, 22:00
Location
Neringa Hotel (Gediminas Ave. 23, Vilnius, Lithuania)
S
SCARLET
CREATIVA
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Dear Colleagues,

We kindly invite you to register for the SCARLET (“Scaling up early and late effects research in Lithuanian childhood cancer survivors through education and twinning“) project Kick-off meeting, to be held in Vilnius on October 10th at the hotel Neringa Hotel (Gediminas Ave. 23, Vilnius, Lithuania).

Program:
The program is indicative and will be refined.

Registration:
Please kindly fill out the registration form, it will help us better prepare for your arrival.

Hotel information:
For your convenience, please fill out the registration form and indicate your arrival dates, so we can assist you with hotel reservations. Once you have completed the registration form, we will promptly provide you with hotel options.

Social part:
Dinner will be held at the restaurant “GRAY” (Pilies St. 2, Vilnius). Before dinner, you are warmly invited to join a city tour of Vilnius.

PROGRAM DOWNLOAD
Conference secretariat | CREATIVA +37060378930 violeta@creativa.lt
Price
PROGRAM
09:45- 10:00
Joining the call
10:00- 10:15
Welcome and Introduction
Project Overview
10:15- 10:45
WP6 Project management and administration
Project Outlook & Objectives Prof. Jelena Rascon, Project coordinator, VULSK, Head of the Centre of Paediatric Oncology and Haematology at VULSK
Project key management issues Renata Blackute (Project manager, VULSK, Department for Knowledge Transfer and Innovation at VULSK)
10:40 - 10:45
Q/A
Work plan. Twinning activities & expected outcomes
10:45-11:20
WP1 Epidemiology and qualitative research
10:45 - 11:00
Task 1.1 Estimation of CCS population in Lithuania
Task 1.2 A focused analysis of survival, late morbidity and mortality in children with paediatric renal tumours
(Lead: PMC, Participants: VULSK, NCI)
Prof. Harm van Tinteren, Princes Maxima Center, Assoc. Prof. Giedre Smailyte, Lithuanian Cancer Registry, National Cancer Institute
11:00 - 11:15
Task 1.3 Training on the methodology of qualitative research
(Lead: UKE, Participants, VULSK, PMC, SIOPE)
Prof. Laura Inhestern, UKE, Dr. Marita Partanen, PMC, SIOPE representatives
11:15 - 11:20
Q/A
11:20 - 11:40
Coffee break
11:40 - 12:20
WP2 Scaling up survivorship research in ALL
Task 2.1 Overcoming transition gap in ALL survivorship research
Task 2.3 Implementation of prospective monitoring of Severe Toxicity-Free Survival
(Lead: REGIONH, Participants: VULSK)
REGIONH representative, TBD, Assoc. Prof. Goda Vaitkeviciene, Principal Investigator of ALL-Together clinical trial in Lithuania, Head of the Department of Paediatric Oncology and Haematology at VULSK
Task 2.2 Training and education in bone toxicity assessment
(Lead: REGIONH, Participants: VULSK, PMC)
REGIONH and PMC representatives, TBD, Emile Zucenkiene, VULSK
12:20 - 13:00
WP3 Targeting specific needs in paediatric CNS tumours
Task 3.1 Training in paediatric CNS tumour-specific neuropsychology (Lead: UKE, Participants: VULSK) Prof. Laura Inhestern, UKE, Dr. Denise Obrecht-Sturm, UKE, Elena Galvydiene, VULSK
Task 3.2 An educational workshop on neurocognitive and neuropsychological sequelae targeting educational professionals, parents and survivors.
(Lead: UKE, Participants: VULSK, PMC, REGIONH, SIOPE)
UKE< VULSK, PMC< REGIONH< SIOPE representatives
Task 3.3 Training in CNS tumour-specific endocrinology
(Lead: PMC, Participants: VULSK)
Dr. Sebastien Neggers, PMC, Assoc. Prof. Zydrune Visockiene, Head of the Center of Endocrinology at VULSK
Task 3.4 Implementation of the personalized care of early and late toxicity profile in paediatric CNS tumours
(Lead: UKE, Participants: VULSK)
Dr. Denise Obrecht-Sturm, UKE, TBD, VULSK
Task 3.5 Evaluation of the patient satisfaction with the CPMS panel outcomes
(Lead: UKE, Participants, VULSK)
Prof. Stefan Rutkowski, UKE, Dr. Denise Obrecht-Sturm, UKE, Prof. Jelena Rascon, VULSK
13:00 – 14:00
Lunch
14:00 - 14:45
WP4 Early and late toxicities in solid childhood tumours
Task 4.1 Evaluation and prevention of early and late ototoxicity
(Lead: PMC, Participants: VULSK)

PMC representative: Prof. Marry van den Heuvel-Eibrink, PMC, Vaiva Mickeviciene, VULSK
Task 4.2 Research on fertility preservation.
(Lead: PMC, Participants: VULSK)
PMC representative: Prof. Marry van den Heuvel-Eibrink, PMC TBD, VULSK
Task 4.3 Scaling-up of research on fertility counselling.
(Lead: PMC, Participants: VULSK)
Prof. Marry van den Heuvel-Eibrink, PMC, Egle Stukaite-Ruibiene, VULSK
14:45 - 15:15
WP5 Strengthening of research management and administration skills
Task 5.1 Sharing best practices on management and administration skills
Task 5.2 Development of training material and in-person training on strengthening research management and administration skills.
(Lead: SIOPE, Participants: VULSK, NCI)

SIOPE representative: Samira Essiaf, SIOP,E Jurgita Mendzinskiene, NCI
Task 5.3 Training on strengthening skills in the communication, dissemination and exploitation activities.
(Lead: SIOPE, Participants: VULSK)
SIOPE representative: Samira Essiaf, SIOPE, Renata Blackute, VULSK
Task 5.4 Short-term onsite or virtual training on European Proposals and/or Project Management
(Lead: VULSK)
15:15- 15:45
WP7 Communication, Dissemination and Exploitation
Task 7.1 Dissemination and communication and exploitation strategy.
Task 7.2 Communication activities.
(Lead: SIOPE, Participants: all) SIOPE representative: Samira Essiaf, SIOPE, Jurgita Juozaityte-Markeviciene, VULSK, Survivors representative: Ausrine Kevalaite
Task 7.3 Peer-reviewed publications.
(Lead: VULSK, Participants: all)
Prof. Jelena Rascon, VULSK
15:45- 16:00
General discussion and closure of the meeting
17:00 – 19:00
Guided Walking Tour
19:00 – 22:00
Dinner at “Grey” restaurant
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