09:45 – 10:00
Joining the call
10:00 – 11:10
Welcome and Introduction. Project Overview and Work Plan.
WP6 Project Management and Coordination
Project Outlook & Objectives
Prof. Jelena Rascon (Project coordinator, VULSK)
WP4 Early and late toxicities in solid childhood tumours
Task 4.1 Evaluation and prevention of early and late ototoxicity
(Lead: PMC, Participants: VULSK)
Prof. Marry van den Heuvel-Eibrink (PMC), Vaiva Mickevičienė (VULSK)
Task 4.2 Research on fertility preservation.
(Lead: PMC, Participants: VULSK)
Task 4.3 Scaling-up of research on fertility counselling.
(Lead: PMC, Participants: VULSK)
Prof. Marry van den Heuvel-Eibrink (PMC)
WP6 Project Management and Coordination
Project key management issues
Renata Blackutė (Project manager, VULSK)
11:10 – 11:30
WP1 Epidemiology and qualitative research
Task 1.1 Estimation of CCS population in Lithuania
Task 1.2 A focused analysis of survival, late morbidity and mortality in children with paediatric renal tumours
(Lead: PMC, Participants: VULSK, NCI)
Prof. Harm van Tinteren (Princes Maxima Center), Assoc. Prof. Giedrė Smailytė (Lithuanian Cancer Registry, National Cancer Institute)
Task 1.3 Training on the methodology of qualitative research
(Lead: UKE, Participants, VULSK, PMC, SIOPE)
Prof. Laura Inhestern (UKE), SIOPE representatives
11:30 – 11:50
Coffee break
11:50 – 12:30
WP2 Scaling up survivorship research in ALL
Task 2.1 Overcoming transition gap in ALL survivorship research
Task 2.3 Implementation of prospective monitoring of Severe Toxicity-Free Survival
(Lead: REGIONH, Participants: VULSK)
Task 2.2 Training and education in bone toxicity assessment
(Lead: REGIONH, Participants: VULSK, PMC)
Christine Dahl (REGIONH), Ruta Tuckuviene (REGIONH), Assoc. Prof. Goda Vaitkevičienė (VULSK), Emilė Žučenkienė (VULSK)
12:30 – 13:15
WP3 Targeting specific needs in paediatric CNS tumours
Task 3.1 Training in paediatric CNS tumour-specific neuropsychology
(Lead: UKE, Participants: VULSK)
Prof. Laura Inhestern (UKE), Dr. Denise Obrecht-Sturm (UKE), Elena Galvydienė (VULSK)
Task 3.2 An educational workshop on neurocognitive and neuropsychological sequelae targeting educational professionals, parents and survivors.
(Lead: UKE, Participants: VULSK, PMC, REGIONH, SIOPE)
UKE< VULSK, PMC< REGIONH< SIOPE representatives
Task 3.3 Training in CNS tumour-specific endocrinology
(Lead: PMC, Participants: VULSK)
Dr. Sebastien Neggers (PMC) Assoc. Prof. Žydrunė Visockienė (VULSK)
Task 3.4 Implementation of the personalized care of early and late toxicity profile in paediatric CNS tumours
(Lead: UKE, Participants: VULSK)
Dr. Denise Obrecht-Sturm (UKE), Monika Kapitančukė (VULSK)
Task 3.5 Evaluation of the patient satisfaction with the CPMS panel outcomes
(Lead: UKE, Participants, VULSK)
Dr. Denise Obrecht-Sturm (UKE), Prof. Jelena Rascon (VULSK)
14:15 – 14:45
WP5 Strengthening of research management and administration skills
Task 5.1 Sharing best practices on management and administration skills
Task 5.2 Development of training material and in-person training on strengthening research management and administration skills.
(Lead: SIOPE, Participants: VULSK, NCI)
SIOPE representative, Samira Essiaf, Lyuba Karpachova (SIOPE), Jurgita Mendžinskienė (NCI)
Task 5.4 Short-term onsite or virtual training on European Proposals and/or Project Management
(Lead: VULSK)
14:45 – 15:15
WP7 Communication, Dissemination and Exploitation
Task 7.1 Dissemination and communication and exploitation strategy.
Task 7.2 Communication activities.
(Lead: SIOPE, Participants: all)
SIOPE representative, Samira Essiaf, Lyuba Karpachova (SIOPE), Survivors representative, Aušrinė Kėvalaitė
Task 7.3 Peer-reviewed publications.
(Lead: VULSK, Participants: all)
Prof. Jelena Rascon (VULSK)
15:15 – 16:00
Round table discussion and closure of the meeting
16:30 – 18:30
Guided Walking Tour
18:30 – 21:30
Dinner at “Grey” restaurant